Academic Themes

HEXI academic theme leads were engaged in a wide range of research and other commissioned projects relating to patient experience, patient involvement and person centred care. That work is listed below.

Understanding and using health experiences

• Testing accelerated experience-based co-design using national patient narratives. In conjunction with King’s College London.
• A wide range of specific health experience narrative research, including: neonatal surgery, ECT, families of adolescents who self harm, early stage chronic kidney disease, influenza like illness in children at risk, relatives of people in a persistent vegetative state, gout, cleft lip and palette, domestic violence, and late miscarriage and stillbirth.
• Using patient narrative to inform development of NICE guidelines and quality standards.  In conjunction with NICE and and King’s College, London.

Patient and public involvement in research

• Testing experiential information as an aid to clinical trial recruitment – the START trial. In conjunction with University of Manchester.
• Researchers’ experience of patient and public involvement in research.
• Comparing narrative interview re-analysis with existing methods for identifying uncertainties about the effectiveness of treatment. In conjunction with NETSCC James Lind Alliance Priority Setting Partnership on Hip and Knee Replacement.
• Researching the impact of patient and public involvement in research. Junior Research Fellowship in conjunction with Oxford Biomedical Research Centre.

Patient reported outcome and experience measures

• Development of a combined Patient Reported Outcome Measure (PROM) and Patient Reported Experience Measure (PREM). In conjunction with University of Kent and the London School of Economics.
• Examination of outcomes of treatments for schizophrenia from patients’ and carers’ perspectives and comparison with conventional clinical scales.
• Evaluation of PROMs in a variety of settings, including clinical trials and real world settings to inform use of PROMs in NHS service delivery. In conjunction with the Picker Institute, Europe.
• Development and testing of a range of PROMs/PREMs:
  • PROMs for long term conditions in primary care
  • Piloting PROMs in mental health services
  • Evaluating the EQ-5D for the NHS Outcomes Framework
  • Using PROMs in commissioning
  • Structured reviews of PROMs for skin cancer and cosmetic surgery
  • PROMs use in a range of clinical trials, mainly in orthopaedics.

Ehealth

• Investigating the effect of online experiential information on users – the EXPERT trial. In conjunction with Sussex, Northumbria and Glasgow Universities.

Commissioning

• Using patient experience to inform commissioning. In conjunction with the National Perinatal Epidemiology Unit and University of Westminster.
• Using patient experience narratives to inform outcomes-based commissioning. In conjunction with COBIC Solutions.

Teaching and learning

• Patient-centred curriculum redesign for autism in primary care. In conjunction with the Royal College of General Practice
• Researching the impact of using patient experience in medical education. In conjunction with Oxford University Hospitals Trust.