Film and Discussion Group: A Life Worth Living
GTC Medical Anthropology Film and Discussion Group
Tuesday 19 February 2019 15:30 to 17:00Speakers: |
Jon Rey-Hastie, co-founder and CEO of DMD Pathfinders |
Location: |
EP Abraham Lecture Theatre, Green Templeton College |
Jon Rey-Hastie presents his film, A Life Worth Living. Jon was diagnosed with Duchenne Muscular Dystrophy (DMD) when he was three years old and has gradually lost muscle function over time. He is now almost paralysed and relies on a ventilator to breathe. A patient advocate and activist, he made a documentary about a journey around the UK and Europe to meet other adults living with DMD.
Jon has a PhD in Government from the University of Sussex. He is co-founder and CEO of DMD Pathfinders, a user led organisation of adults living with Duchenne which provides advice, guidance and support for other teenagers and adults living with the condition. He sits on the NHS England Strategic Co-production Group for Personalised Care, and is the Chair of Trustees of Possibility People, a user led organisation of disabled people in Sussex.
The GTC Medical Anthropology Film and Discussion Group’s Hilary Term 2019 meetings will examine how disability is portrayed in film.
Location:
EP Abraham Lecture Theatre
Green Templeton College
43 Woodstock Road
Oxford
OX2 6HG
